mylescorcoran: (Default)
Add MemoryShare This Entry
posted by [personal profile] mylescorcoran at 12:04pm on 03/04/2008 under , ,
Avid readers of [livejournal.com profile] sammywol will know already from this post, but I felt I should keep my friends-list up to date.

My daughter Rowan has had pains on and off in her arms and knees for several months and the GP and specialist have decided it the most likely diagnosis is polyarticulate juvenile arthritis. This is a bit worrying partly because it's one of those conditions that doesn't seem to have any single underlying cause that you can treat, partly because, well, just because we're parents and we worry.

Most of the time Rowan doesn't seem to have any problems; she's active and pain-free. Sometimes she has pains and aches which unfortunately don't respond particularly well to the NSAIDs (ibuprofen for the most part). A couple of times she's had difficulty getting started in the mornings from stiffness, though of course I have that to and blame the prospect of having to face work.

Anyway, investigations are ongoing, and it's early days. Most of the stuff I've read about it suggests that she'll be find as long as we get regular check-ups and a variety of treatments (drug and non-drug like physio, school support and so on).

So now you know.

More upbeat - new pics up at our Picasa gallery.



(ETA: Thanks to [livejournal.com profile] doc_mystery for the JRA link (and others) provided above.)
There are 14 comments on this entry. (Reply.)
 
posted by [identity profile] fjm.livejournal.com at 11:42am on 03/04/2008
Has she been tested for celiac? Sorry to play armchair doctor here, but joint pain and stiffness is one of the symptoms, but it *isn't* a symptom which tends to trigger testing (I didn't have noticeable stomach trouble until I'd already had years of joint pain).
mylescorcoran: (Default)
posted by [personal profile] mylescorcoran at 12:05pm on 03/04/2008
Good point, and I don't think she's been tested for celiac yet. I'll have to check with [livejournal.com profile] sammywol to be sure.

What other symptoms did you have at the same time as the joint pain and stiffness, if you don't mind me asking?
 
posted by [identity profile] fjm.livejournal.com at 12:46pm on 03/04/2008
At that age? According to my Dad, smelly poo.

At the age of about 8 I started to get stomach problems, always dismissed as "a bug" and I started to faint a lot, caused by a sudden drop in blood pressure, in turn sometimes triggered by heat (department stores were bad).

I was always very stiff compared to classmates, and often complained of soreness, but the joints got very painful around the age of ten, when they were dismissed as growing pains.

Migraine from the age of 11.

skin trouble from the age of 14.

Generally sickly until the age of 26 when everything went downhill very fast: always skinny I started dropping weight like an anorexic, eventually lost my appetite, and moved from the runs to constitipation in a sort of weekly cycle.

Note that celiac runs at something like in 1 in 100 in the Irish population so it's worth a check, even if it comes back negative.
 
posted by [identity profile] drcpunk.livejournal.com at 01:37am on 04/04/2008
Is celiac the one where a treatment is to drink something with a symbiote in it every six months or so?
 
posted by [identity profile] fjm.livejournal.com at 05:57am on 04/04/2008
No, the treatment is to avoid even the slightest traces of wheat, rye, barley (and possibly oats).
mylescorcoran: (Default)
posted by [personal profile] mylescorcoran at 08:17am on 04/04/2008
Which would be a disaster from Rowan's perspective (favourite foods: noodles, crumpets, pizza, pasta).

Thank you for sharing your childhood experiences. It sounds like you had a bloody hard time of it, and I'm glad you finally got on top of it.

We'll definitely get Rowan checked for celiac.
 
posted by [identity profile] fjm.livejournal.com at 08:22am on 04/04/2008
noodles, crumpets, pizza, pasta

All now available in increasingly tasty gluten free versions.
mylescorcoran: (Default)
posted by [personal profile] mylescorcoran at 08:26am on 04/04/2008
It's the increasingly tasty part that may prove crucial. She's suspicious as only a 5 yo can be of 'strange food', particularly stuff that looks almost but not quite like what she's used to.

It's great that things have improved for the gluten-free consumer though. Long may it continue.
 
posted by [identity profile] peaseblossom.livejournal.com at 12:17pm on 03/04/2008
Adorable photos! I hope everything works out well for you guys. I was actually diagnosed with juvenile rheumatoid arthritis when I was like three, but it turns out I just had strep.
mylescorcoran: (Default)
posted by [personal profile] mylescorcoran at 12:47pm on 03/04/2008
Thanks! I'm remaining steadfastly hopeful that the JRA will be manageable and not really hold Rowan back. She's such an active kid and takes such obvious joy in using her body, I'd be heart-rent if she were to lose mobility.
 
posted by [identity profile] curiouswombat.livejournal.com at 06:53pm on 03/04/2008
Thank you for sharing the pics. Here's wishing Rowan a painfree childhood.

Well - a painfree adulthood too, obviously...!
mylescorcoran: (Default)
posted by [personal profile] mylescorcoran at 08:18am on 04/04/2008
Thanks! Like the icon, particularly in the circumstances.
 
posted by [identity profile] doc-mystery.livejournal.com at 12:41pm on 04/04/2008
Those are some great pictures. Rowan looks like a busy little girl!

::B::
mylescorcoran: (Default)
posted by [personal profile] mylescorcoran at 02:26pm on 04/04/2008
Yep, and all the better for it, I hope.

Links

January

SunMonTueWedThuFriSat
1
 
2
 
3
 
4
 
5
 
6
 
7
 
8
 
9
 
10
 
11
 
12
 
13
 
14
 
15
 
16
 
17 18
 
19
 
20
 
21
 
22
 
23
 
24
 
25
 
26
 
27
 
28
 
29
 
30
 
31